CHINA

Cancer Registration etc. in China (some information):

Statistics on cancer in China: cancer registration in 2002“, Yang, L; Parkin, D M; Whelan, S; Zhang, S; Chen, Y; Lu, F; Li, L, European Journal of Cancer Prevention, August 2005 – Volume 14 – Issue 4 – pp 329-335 (link to abstract)

Abstract
The objective of this study was to determine how many population-based cancer registries exist in China, what methods are being used, and the statistical data that are available from them, and to identify future needs with respect to technical support.
A two-stage survey was conducted in 2002 at provincial and cancer registry level. Based on the questionnaire used in these two stages, the basic distribution and descriptive information on population-based cancer registry practices in China are addressed.
There are 48 cancer registries in China, covering 73 million people (5.7% of the total population of China in 2000).
The oldest three registries are LinZhou, ShangHai and QiDong.
There are marked variations in practice between registries, with respect to data collection, data management and coding.
Differences are also found in administrative aspects and sources of financial support.
In conclusion, this first national survey of Chinese cancer registry practice provides a benchmark against which development and standardization can be evaluated in the future.
The survey suggests that lack of qualified personnel, insufficient funding support and lack of stability of the population are major problems in carrying out registration work in China. It also indicates several ways in which registry practice, and hence availability and quality of incidence and survival data can be improved.

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The Shanghai Cancer Registry
Department of Epidemiology of the Shanghai Cancer Institute:
http://www.shsci.org/eyjz7.html  [link not valid?]
other link to SCI: http://www.fogartyscholars.org/sites/china-sci
“… The Shanghai Cancer Registry, a population-based cancer registry, was initiated and established in the Department (of Epidemiology of the Shanghai Cancer Institute) to collect and analyze data of caner incidence, mortality and survival, as well as secular trends of cancer incidence during the period of 1963 and 2001.

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Mortality registration and surveillance in China: History, current situation and challenges“, Gonghuan Yang, Jianping Hu, Ke Quin Rao, Jeimin Ma, Chalapati Rao and Alan D Lopez, Population Health Metrics 2005, (3:3doi:10.1186/1478-7954-3-3)  <Free Full Text>
http://www.pophealthmetrics.com/content/3/1/3

Current situation:
The Chinese vital registration system currently covers 41 urban and 85 rural centres, accounting for roughly 8 % of the national population. Quality of registration is better in urban than in rural areas, and eastern than in western regions, resulting in significant biases in the overall statistics. The Ministry of Health introduced the Disease Surveillance Point System in 1980, to generate cause specific mortality statistics from a nationally representative sample of sites. Currently, the sample consists of 145 urban and rural sites, covering populations from 30,000 – 70,000, and a total of about 1 % of the national population. Causes of death are derived through a mix of medical certification and ‘verbal autopsy’ procedures, applied according to standard guidelines in all sites. Periodic evaluations for completeness of registration are conducted, with subsequent corrections for under reporting of deaths.

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